WASHINGTON — U.S. Sen. Ron Johnson (R-Wis.), chairman of the Senate Homeland Security and Governmental Affairs Committee, said this after the House failed to pass right to try legislation Tuesday:
“It’s disappointing to see the House fail to pass commonsense legislation that would give the right to hope to so many terminally ill patients in America. I pledge to work tirelessly on behalf of patients and their families until right to try is signed into law.”
The Johnson-Donnelly bill that passed the Senate by unanimous consent on Aug. 3, 2017, can be found here.
Thirty-eight states already have passed right to try bills on an overwhelmingly bipartisan basis.
Details on Johnson’s right to try work can be found below:
Feb. 18, 2016: Johnson’s letter to the FDA can be found here.
Feb. 25, 2016: Johnson held a hearing on connecting patients to new and potential life saving treatments.
Feb. 25, 2016: Johnson expressed his support for right to try.
March 16, 2016: Letter from Sens. Johnson, Carper, Donnelly and Coats to the FDA on can be found here.
April 26, 2016: Johnson’s statement on an FDA panel not approving eteplirsen can be found here.
May 10, 2016: Johnson introduced the Trickett Wendler Right to Try Act.
May 23, 2016: Johnson’s and Sen. Coats’ letter to the FDA can be found here.
June 16, 2016: Johnson advocates for right to try legislation at a Capitol Hill rally.
Sept. 16, 2016: Johnson’s and Sen. Alexander’s letter to the FDA can be found here.
Sept. 19, 2016: Johnson letter to FDA Commissioner Califf expressing disappointment at his refusal to testify at a right to try hearing.
Sept. 19, 2016: Johnson applauds an FDA decision to approve eteplirsen to treat Duchenne muscular dystrophy.
Sept. 22, 2016: Johnson held a hearing on right to try.
Sept. 22, 2016: Johnson calls on fellow senators to pass bill to give terminally ill patients hope.
Sept. 26, 2016: Johnson calls on Senate to support right to try legislation.
Sept. 28, 2016: Johnson criticizes partisan blocking of bill for terminally ill patients.
Sept. 29, 2016: Johnson corrects the record in letter to Minority Leader Reid after right to try bill is blocked.
Oct. 24, 2016: After FDA’s silence, Johnson presses HHS for answers on right to try laws.
Nov. 16, 2016: 44th senator co-sponsors legislation giving terminally ill patients hope.
Jan. 24, 2017: Johnson re-introduces Trickett Wendler Right to Try Act with 39 original co-sponsors.
Oct. 2, 2017: Johnson and Donnely write letter to House Energy and Commerce Committee.
Feb. 2, 2018: President Trump encourages Congress to pass Right to Try.